I was an A student. I made honour roll, I attended a private school in Montreal that required an entrance exam. 75 was a fail and if you had 85+ in the course going into exams, you were exempted from writing the final. I wrote 1 final (in Math) in my 2 years there, and I had an 83...I completed my Masters in 8 months. I've taken a number of courses since, and I'd go back to school in a heart beat.
I'm not bragging. I'm framing my background. I had one C+ in my life, and that was in 2nd year Stats. Since I had a B in first term, my overall mark was a B-.
And then we adopted my daughter. She's been diagnosed with ARND-Alcohol Related Neurodevelopmental Disorder, due to her birth mom's alcohol and crack use during pregnancy. My daughter doesn't have the visual facial clues, but she certainly has the aftermath. And since she started school, her mother has had to shift academic expectations, which has been a tougher lesson than expected.
My parents had very high academic expectations. My father could find the typos in an A+ paper (and did). I would have to explain where the other 8 marks went if I brought home a 92. I missed an academic scholarship in university by .2% because the prof chose to round down rather than up and my GPA was .2 too low for the scholarship cut off. I had visions of my daughter following in my academic path.
My daughter is smart. She's visual-if she sees something, she can do it. If she can find the pattern in things, she can do it. She makes Rainbow Loom creations by the dozen by watching YouTube videos. She has trouble processing auditory information and misses most of the instructions given verbally because by the time she has processed the instruction, she's forgotten the beginning. She has anxiety that is exasperated by stress, and trying to learn new things in a "loud" classroom is stressful. She was always the last kid out of the school. There was an inverse relationship between how cold it was outside, how much of a human popsicle her mother had become and how long it took her to get ready. After speaking with a FASD expert, I now understand that she can't process what to do if too many people are doing it at the same time so she waits. She was getting overwhelmed trying to remember what to do to get ready-put her lunchbag in her backpack, bring her homework, change her shoes etc. So now I go later and neither one of us are as stressed or cranky.
Our school is doing its best to help her and we've been blessed with good teachers, for the most part. The very nature of the learning environment is not conducive to my daughter's challenges. We often have a massive meltdown right after she gets home. She's held it together all day, and now she's in a safe place and it all comes out. She tries hard, and once she grasps a concept, she's okay, but it can take a LONG TIME for that to happen and when she forgets to bring home her homework, or write it down then I'm flying blind trying to help her.That happens often and she's just finished Grade 3.
How that translates is that her academic marks do not reflect her actual abilities and talents. She freezes on tests or rushes through them, making silly errors. Her report cards do not reflect her actual abilities, but some of the marks have had me biting my tongue because I have to keep reminding myself that she is doing her best, and deals with unbelievable challenges every day because of the damage to her brain that her birth mom inflicted on her. Just as you wouldn't yell at a blind child for not reading from a printed text held up to their eyes, I have to remember that in my daughter's case, with rare exceptions, it's not a won't it's a can't.
It's been a tough lesson for me, and I have to keep reminding myself that she is doing her best. They may not have been the marks that I would have received, but as she said to me one day last year, "Mommy, I'm not like you or Hermione (because we were in a Harry Potter phase)...I don't like school." We work together to help her understand, and she's doing her best.
On Mother's Day, she wrote a list of things she loved about me. "Helps me with my homework" was mentioned twice. It's a painful period for both of us, but it's making a difference, and at the end of the day, that's all that matters.
So the expectation is my problem to deal with, not hers. She's trying her best, and that's all that matters. If the school can't teach how she learns, then maybe the school should change how they teach...and I'll fill in the gaps in the meantime.
The ponderings, speculations, rants and observations of a professional writer, work from home mom, crafter, singer and wife.
Tuesday, June 24, 2014
Sunday, April 13, 2014
Choices
Sometimes in life, you just have to say "screw it." Whether that means ordering the egg McMuffin and double hash browns, ignoring the dust bunnies in favour of a favourite show, ordering the $10 dessert or giving up and going to bed, knowing you will be up at the crack of stupid the next day. And sometimes, it means giving up a fight, taking your marbles and going home.
I don't talk much about my faith. I believe that faith is deeply personal, and it is possible to be a deeply spiritual person without being a member of an organized religion. I also believe the God of my understanding doesn't care what building you are sitting in, what clothes you are wearing, what words you use or what book you reference, as long as you live a life that is loving to each other, peaceful in nature and which leaves your little corner of the world more loving. As it happens, however, I have been a member of the Catholic church all of my life. Recent events have shaken my membership in that institution, and in some ways, also shaken the bedrock of my faith.
I grew up in an alcoholic home, and especially when I was a teen, the only constant I had every week was the ritual of mass. I knew that I could walk into any Catholic church anywhere in the world, and it would be the same, consistent, reassuring and constant. It was the faith that I grew up in, and for more years than I can remember, it was the faith that I have practiced through my singing, by being a choir member, a cantor, a funeral cantor, a wedding cantor...Singing is how I have always prayed because music breaks through barriers that everything else resists.
When my daughter arrived, she started attending church with us. I would sit in the side pew of the choir loft and I often fed her a bottle while simultaneously singing the offertory hymn with the aid of a music stand. When she got older, she sat in the back pew with my husband while I did my choir cantor thing at the front. Until she was in school full-time, if I had to sing at a funeral, she would go and spend time with my mom. When that option was no longer available, she would come to church with me and sit in the side pew. She was used to funerals and behaved reasonably well for the most part.
My daughter has recently been diagnosed with ARND-Alcohol Related Neurodevelopmental Disorder. It is a form of Fetal Alcohol, and is a legacy of her birth mom, along with the crack. What it means, is that while she does not have the facial cues, alcohol caused permanent brain damage. Her left and right sides didn't develop equally, developed partially and parts didn't develop at all. She has trouble with transitions, she has trouble with too much noise, light and sound, and has a myriad of other challenges that we are dealing with and determining. And it is all internal, so the meltdown and movement looks like misbehaving rather than overload, and it is often judged as lenient parenting rather than understanding what my daughter needs to deal with an impending overload.
My daughter misbehaved at church. There's a lot more to it, but that encapsulates it. I made some poor decisions trying to give her responsibility...and I was informed that unless someone was with her 100% of the time from now on, she couldn't attend mass. Choir members had complained. If I brought her alone, my only job was to "sit in the corner and make her behave." The message was delivered by someone that I would have called a friend, and more insult to injury, the mother of two special needs adults. And the message had been sent from the priest.
To say that I was shocked, hurt and stunned is an understatement. The message was delivered in front of some of the choir members. The institution that preaches acceptance and tolerance had just turned its back on one of its young members, and one with special needs. Nowhere in any of my bibles does it say "let the little children come to me, but only if they sit down and behave..." Pope Francis speaks of acceptance, didn't seem at all worried that a little fellow wandered up, sat in his chair and gave him a hug. Pope Francis patted his head and kept going. The message was clear-I was welcome. My daughter was banned.
This has rocked me on a fundamental level. I know that my daughter is going to have a rough go, but of all places, church should have been the safe, welcome place. After a week of agonizing, praying, crying, trying to take the emotion out of it and figuring out what my daughter would learn if I stayed, and what she would learn if I left, I chose to leave. I kept coming back to "screw it." While I don't know for certain, I have a strong idea of who complained, and since it worked once, they will do it again, because let's face it, some of the least Christian people in the church are usually part of the organization and some of the least tolerant may be standing at the pulpit.
At the end of the day, if my daughter isn't welcome, then neither am I because she needs to know with 100% certainty that I have her back, even when she screws up. There will be enough people knocking her down and judging her. I need to be her safe place to fall, even when it's a crash landing.
So the first time in I have no idea how many years-25-30? I am just a parishioner. I am no longer tied to a certain mass on a certain day and time. We church surfed for a couple of months, and I think we have settled on a new place. The priest is on a personal mission to get my daughter to smile, and upon hearing some of the reason why we changed churches (because he had been trying to encourage me to join that church for awhile) promptly turned and invited her to become an altar server. He wasn't at all concerned with her challenges, he was willing to work around them.
It was very disconcerting to sit in the congregation during Palm Sunday. Easter is the liturgical time of year that spoke to me the most. I suspect that Good Friday and Easter Sunday will be equally disconcerting. Having my child rejected by the place that was my anchor has likewise pulled my sense of belonging out of its foundation. I attend church now, but my sense of connectedness is gone. I no longer feel a part of the institution that was my safe place all of my life.
In much of my life, I have felt like an outlier, a square peg in a world of round holes, a misfit...but I never expected to feel that way in church. And the fact that my daughter was rejected takes things to a whole new level, since her challenges were well known. I don't feel a part of the Catholic Church any more. I'm just going through the motions and hoping that equilibrium will return. Solace and spiritual comfort are gone for me. I guess I'll have to find a way to make my own.
I don't talk much about my faith. I believe that faith is deeply personal, and it is possible to be a deeply spiritual person without being a member of an organized religion. I also believe the God of my understanding doesn't care what building you are sitting in, what clothes you are wearing, what words you use or what book you reference, as long as you live a life that is loving to each other, peaceful in nature and which leaves your little corner of the world more loving. As it happens, however, I have been a member of the Catholic church all of my life. Recent events have shaken my membership in that institution, and in some ways, also shaken the bedrock of my faith.
I grew up in an alcoholic home, and especially when I was a teen, the only constant I had every week was the ritual of mass. I knew that I could walk into any Catholic church anywhere in the world, and it would be the same, consistent, reassuring and constant. It was the faith that I grew up in, and for more years than I can remember, it was the faith that I have practiced through my singing, by being a choir member, a cantor, a funeral cantor, a wedding cantor...Singing is how I have always prayed because music breaks through barriers that everything else resists.
When my daughter arrived, she started attending church with us. I would sit in the side pew of the choir loft and I often fed her a bottle while simultaneously singing the offertory hymn with the aid of a music stand. When she got older, she sat in the back pew with my husband while I did my choir cantor thing at the front. Until she was in school full-time, if I had to sing at a funeral, she would go and spend time with my mom. When that option was no longer available, she would come to church with me and sit in the side pew. She was used to funerals and behaved reasonably well for the most part.
My daughter has recently been diagnosed with ARND-Alcohol Related Neurodevelopmental Disorder. It is a form of Fetal Alcohol, and is a legacy of her birth mom, along with the crack. What it means, is that while she does not have the facial cues, alcohol caused permanent brain damage. Her left and right sides didn't develop equally, developed partially and parts didn't develop at all. She has trouble with transitions, she has trouble with too much noise, light and sound, and has a myriad of other challenges that we are dealing with and determining. And it is all internal, so the meltdown and movement looks like misbehaving rather than overload, and it is often judged as lenient parenting rather than understanding what my daughter needs to deal with an impending overload.
My daughter misbehaved at church. There's a lot more to it, but that encapsulates it. I made some poor decisions trying to give her responsibility...and I was informed that unless someone was with her 100% of the time from now on, she couldn't attend mass. Choir members had complained. If I brought her alone, my only job was to "sit in the corner and make her behave." The message was delivered by someone that I would have called a friend, and more insult to injury, the mother of two special needs adults. And the message had been sent from the priest.
To say that I was shocked, hurt and stunned is an understatement. The message was delivered in front of some of the choir members. The institution that preaches acceptance and tolerance had just turned its back on one of its young members, and one with special needs. Nowhere in any of my bibles does it say "let the little children come to me, but only if they sit down and behave..." Pope Francis speaks of acceptance, didn't seem at all worried that a little fellow wandered up, sat in his chair and gave him a hug. Pope Francis patted his head and kept going. The message was clear-I was welcome. My daughter was banned.
This has rocked me on a fundamental level. I know that my daughter is going to have a rough go, but of all places, church should have been the safe, welcome place. After a week of agonizing, praying, crying, trying to take the emotion out of it and figuring out what my daughter would learn if I stayed, and what she would learn if I left, I chose to leave. I kept coming back to "screw it." While I don't know for certain, I have a strong idea of who complained, and since it worked once, they will do it again, because let's face it, some of the least Christian people in the church are usually part of the organization and some of the least tolerant may be standing at the pulpit.
At the end of the day, if my daughter isn't welcome, then neither am I because she needs to know with 100% certainty that I have her back, even when she screws up. There will be enough people knocking her down and judging her. I need to be her safe place to fall, even when it's a crash landing.
So the first time in I have no idea how many years-25-30? I am just a parishioner. I am no longer tied to a certain mass on a certain day and time. We church surfed for a couple of months, and I think we have settled on a new place. The priest is on a personal mission to get my daughter to smile, and upon hearing some of the reason why we changed churches (because he had been trying to encourage me to join that church for awhile) promptly turned and invited her to become an altar server. He wasn't at all concerned with her challenges, he was willing to work around them.
It was very disconcerting to sit in the congregation during Palm Sunday. Easter is the liturgical time of year that spoke to me the most. I suspect that Good Friday and Easter Sunday will be equally disconcerting. Having my child rejected by the place that was my anchor has likewise pulled my sense of belonging out of its foundation. I attend church now, but my sense of connectedness is gone. I no longer feel a part of the institution that was my safe place all of my life.
In much of my life, I have felt like an outlier, a square peg in a world of round holes, a misfit...but I never expected to feel that way in church. And the fact that my daughter was rejected takes things to a whole new level, since her challenges were well known. I don't feel a part of the Catholic Church any more. I'm just going through the motions and hoping that equilibrium will return. Solace and spiritual comfort are gone for me. I guess I'll have to find a way to make my own.
Monday, August 12, 2013
Rant about email subscriptions
Dear company:
It's not you, it's me. Okay, technically, it's my spouse, but anyway, I have to leave you. I don't want to, I'd like to change, but you aren't making it possible. You won't adapt, you won't meet me halfway, so I have to walk away.
I'm in email update Hades right now. My husband decided we are going to change web service providers, which is necessitating a change in email address. I've had that email address for a long time, it's tied to my business, it's a part of my communications platform, and shortly, poof, it will be gone. And the transition is becoming a giant pain in the server.
Hey, companies, it's 2013. You have Facebook and Twitter and Linked In and RSS and Pinterest and blogs and e-communications and you want me to subscribe to get all the latest updates and coupons and deals and whatever...so why do you make it so freaking complicated to KEEP doing that?
If I had a dollar for every time the last few days that I have had to unsubscribe and resubscribe rather than just update my email, I could take my family out to dinner, and I'm not talking McDonalds. We're getting into Red Lobster territory, here. Many blogs, companies and other places now have an "update preferences" option on their e-communications. Make it easy for me to stay with you, why don't you? Every time I have unsubscribe and turn around a second later and resubscribe, somewhere, a computer chip cries. It CAN'T be that complicated to add the feature-other companies have managed just fine.
A couple of companies insisted that I couldn't just update, I had to start over with a new profile. I quit those companies. If they are that hinky about an email, what would their return policy or defective merchandise policy be like? I grudgingly subscribed to one retailer because, although it's beyond me why, my 8 year old daughter adores their over priced, oversexed $50 for a pair of jeans with rips and holes in them clothing, and I was hoping for a coupon or discount once in a while. According to the chirpy little customer service rep at the end of an email, I had to set up a whole new profile to update my email because they "didn't have the functionality to just update." Seriously? SERIOUSLY? Nope, I don't think so. Just take me off the list.
I have a quizillion things tied to my current email address. It's a sign on, a communications channel, a way for clients and editors and friends and colleagues to reach me...and I'm trying to remember all of them and update them. I also have listserves and newsletters and blogs and a bunch of other things that I receive email from. I know I won't capture all the changes, but hopefully I'll hit the important ones. I have every loyalty card known to creation...but don't push me.
So, really, it IS you, company. Get with the program, use the freaking technology or I'll move on. Don't make it harder than it has to be to stay in touch with you, because frankly, this whole process is making me cranky and my kid found and disposed of my candy stash and I don't plan on restocking until the kid is back in school.
It's not you, it's me. Okay, technically, it's my spouse, but anyway, I have to leave you. I don't want to, I'd like to change, but you aren't making it possible. You won't adapt, you won't meet me halfway, so I have to walk away.
I'm in email update Hades right now. My husband decided we are going to change web service providers, which is necessitating a change in email address. I've had that email address for a long time, it's tied to my business, it's a part of my communications platform, and shortly, poof, it will be gone. And the transition is becoming a giant pain in the server.
Hey, companies, it's 2013. You have Facebook and Twitter and Linked In and RSS and Pinterest and blogs and e-communications and you want me to subscribe to get all the latest updates and coupons and deals and whatever...so why do you make it so freaking complicated to KEEP doing that?
If I had a dollar for every time the last few days that I have had to unsubscribe and resubscribe rather than just update my email, I could take my family out to dinner, and I'm not talking McDonalds. We're getting into Red Lobster territory, here. Many blogs, companies and other places now have an "update preferences" option on their e-communications. Make it easy for me to stay with you, why don't you? Every time I have unsubscribe and turn around a second later and resubscribe, somewhere, a computer chip cries. It CAN'T be that complicated to add the feature-other companies have managed just fine.
A couple of companies insisted that I couldn't just update, I had to start over with a new profile. I quit those companies. If they are that hinky about an email, what would their return policy or defective merchandise policy be like? I grudgingly subscribed to one retailer because, although it's beyond me why, my 8 year old daughter adores their over priced, oversexed $50 for a pair of jeans with rips and holes in them clothing, and I was hoping for a coupon or discount once in a while. According to the chirpy little customer service rep at the end of an email, I had to set up a whole new profile to update my email because they "didn't have the functionality to just update." Seriously? SERIOUSLY? Nope, I don't think so. Just take me off the list.
I have a quizillion things tied to my current email address. It's a sign on, a communications channel, a way for clients and editors and friends and colleagues to reach me...and I'm trying to remember all of them and update them. I also have listserves and newsletters and blogs and a bunch of other things that I receive email from. I know I won't capture all the changes, but hopefully I'll hit the important ones. I have every loyalty card known to creation...but don't push me.
So, really, it IS you, company. Get with the program, use the freaking technology or I'll move on. Don't make it harder than it has to be to stay in touch with you, because frankly, this whole process is making me cranky and my kid found and disposed of my candy stash and I don't plan on restocking until the kid is back in school.
Wednesday, May 29, 2013
Rituals
Cross post from The Sandwich Chronicles.
I never thought I would preside over my own mother's burial.
I never thought I would preside over my own mother's burial.
Thursday, May 16, 2013
Appropriate
If I had a loonie for every time that word has come out of my mouth in the last couple of months I would be debt free...
To preface things: I like plain clothing. I like well tailored, simple classic pieces that aren't flashy, fancy or too tight. I've never cared a fig for designer labels, mainly because when you have a big bust, designer clothes don't FIT you. Even when I was much thinner, I had hips and thighs and breasts and Designer off-the-rack clothes don't FIT me.
And I don't like to stand out. When you have large breasts, you don't usually have to draw attention to them. More people than I can count have conducted whole conversations to them. Newsflash: they don't talk back. And confession time: I was molested when I was 12 or 13. I was fondled on my breasts, and when I slapped the hand away, he said "do you blame me." I was a kid, I was naive and I knew nothing about sexuality etc, and it took me until my mid-20s to put the blame where it belonged. My lasting legacy, however is to cover up.
And to put the cherry on the top, my mother was still telling me what to wear to her funeral on her deathbed, because even at 49, she didn't trust me to dress myself. So I come with issues around clothing.
Enter my 8 year fashionista daughter. Although it's probably my fault for letting her watch the Disney Channel, she wants to look like the teens on the shows she sees. She wants to wear off the shoulder tops, skinny jeans with rips, tops with cutaways, string bikinis and she's never met a bling she didn't like. She wants to wear big hoop earrings like Selena Gomez. Did I mention she's 8...
Clothing manufacturers don't make it easy to dress our little girls as 8 year olds and not mini-tarts. Go into most girls' sections and you will have off the shoulder tops, skinny jeans with rips, tops with cutaways and the like. The skirts are short, the tops are low...what happened to letting our children be children?
I'm trying very hard not to be as dictatorial about clothing as my mother was. That being said, I am simply not comfortable with my daughter dressing like Trailer Trash Barbie. I'm trying to find a middle ground, and we have had conversations for a couple of years about clothing and appropriateness and classy versus trashy. We once sat on a ride at a fall fair and critiqued some of the outfits. To be fair, she asks me (constantly) mommy could I wear that, and I do try to find some middle ground. I'm trying to let her make some of her own choices.
She declared to the whole women's change room yesterday that my clothes were disgusting. She was mad because I wouldn't let her wear a particular top without something under it, and she was lashing out. She still can't wear the top.
But in my heart of hearts, I think she has a point. While I will never be comfortable with cleavage or super tight jeans (Pillsbury dough girl anyone? shudder) maybe I could try a belt once in a while...My mother told me it just made me look fatter and I'm ingrained to just listen. Besides, belts aren't comfortable. I like colour, but solids. I have a couple of prints...in black and white. Maybe I could try something more daring. I have a horror of looking like an ottoman. I'm already shaped like one these days.
My mother based all of her fashion thinking on what the CBC Newsworld anchors were wearing, who, of course, you only see from the waist up. Although it was one of her best colours, it took a lot of convincing to get my mother to wear bright pink because she didn't think an octagenarian should wear bright pink. While my mom is still exercising her influence from the grave, (when I was dressing for my birthday, I had chosen a lovely grey knit dress. Clear as a bell in my head, I heard "it won't look very nice in pictures, dear." and she was right, so I changed...) she wasn't always right. (sorry mom).
I'm sure my daughter and I can find middle ground, although right now I'm tempted to re-outfit her closet with plain t-shirts and plain jeans to eliminate the fight. She is a strong independent thinker with her own opinions...and if I channel in the right direction, she'll be unstoppable. once she's not grounded any more for being rude to her mother...
To preface things: I like plain clothing. I like well tailored, simple classic pieces that aren't flashy, fancy or too tight. I've never cared a fig for designer labels, mainly because when you have a big bust, designer clothes don't FIT you. Even when I was much thinner, I had hips and thighs and breasts and Designer off-the-rack clothes don't FIT me.
And I don't like to stand out. When you have large breasts, you don't usually have to draw attention to them. More people than I can count have conducted whole conversations to them. Newsflash: they don't talk back. And confession time: I was molested when I was 12 or 13. I was fondled on my breasts, and when I slapped the hand away, he said "do you blame me." I was a kid, I was naive and I knew nothing about sexuality etc, and it took me until my mid-20s to put the blame where it belonged. My lasting legacy, however is to cover up.
And to put the cherry on the top, my mother was still telling me what to wear to her funeral on her deathbed, because even at 49, she didn't trust me to dress myself. So I come with issues around clothing.
Enter my 8 year fashionista daughter. Although it's probably my fault for letting her watch the Disney Channel, she wants to look like the teens on the shows she sees. She wants to wear off the shoulder tops, skinny jeans with rips, tops with cutaways, string bikinis and she's never met a bling she didn't like. She wants to wear big hoop earrings like Selena Gomez. Did I mention she's 8...
Clothing manufacturers don't make it easy to dress our little girls as 8 year olds and not mini-tarts. Go into most girls' sections and you will have off the shoulder tops, skinny jeans with rips, tops with cutaways and the like. The skirts are short, the tops are low...what happened to letting our children be children?
I'm trying very hard not to be as dictatorial about clothing as my mother was. That being said, I am simply not comfortable with my daughter dressing like Trailer Trash Barbie. I'm trying to find a middle ground, and we have had conversations for a couple of years about clothing and appropriateness and classy versus trashy. We once sat on a ride at a fall fair and critiqued some of the outfits. To be fair, she asks me (constantly) mommy could I wear that, and I do try to find some middle ground. I'm trying to let her make some of her own choices.
She declared to the whole women's change room yesterday that my clothes were disgusting. She was mad because I wouldn't let her wear a particular top without something under it, and she was lashing out. She still can't wear the top.
But in my heart of hearts, I think she has a point. While I will never be comfortable with cleavage or super tight jeans (Pillsbury dough girl anyone? shudder) maybe I could try a belt once in a while...My mother told me it just made me look fatter and I'm ingrained to just listen. Besides, belts aren't comfortable. I like colour, but solids. I have a couple of prints...in black and white. Maybe I could try something more daring. I have a horror of looking like an ottoman. I'm already shaped like one these days.
My mother based all of her fashion thinking on what the CBC Newsworld anchors were wearing, who, of course, you only see from the waist up. Although it was one of her best colours, it took a lot of convincing to get my mother to wear bright pink because she didn't think an octagenarian should wear bright pink. While my mom is still exercising her influence from the grave, (when I was dressing for my birthday, I had chosen a lovely grey knit dress. Clear as a bell in my head, I heard "it won't look very nice in pictures, dear." and she was right, so I changed...) she wasn't always right. (sorry mom).
I'm sure my daughter and I can find middle ground, although right now I'm tempted to re-outfit her closet with plain t-shirts and plain jeans to eliminate the fight. She is a strong independent thinker with her own opinions...and if I channel in the right direction, she'll be unstoppable. once she's not grounded any more for being rude to her mother...
Thursday, April 11, 2013
Snow Day and a Special Needs Child
SNOW DAY! When I was a kid, I can remember being glued to the radio on snowy mornings, waiting for the magical words "Schools in the Baldwin-Cartier school board are closed..." and then we'd head out for a play day in the snow. Snow days are still magical days for kids...unless your kid happens to have OCD and Anxiety and things like a change in schedule can throw her off for days.
It's April in Canada. It's been a weird year. We are currently sitting under a severe freezing rain warning, and the school boards have just closed all the schools for the day. While I think it was the safe decision, I'm not looking forward to the reaction when my little girl wakes up and finds out. You see, today was supposed to be a retreat day in preparation for her First Communion on Saturday. With school being closed today, it will be bumped to tomorrow...
Fridays are the Kid's favorite day of the week. Friday means art, hot lunch, STEAM program and Tumblebus. If the retreat is moved to Friday, none of these things will happen because the Kid will be at the church all day. And that will be enough to set her off for the weekend.
She will worry about missing STEAM and Tumblebus. She will worry about her hot lunch and what will happen to it. She will be upset that she's missing art and STEAM. All of these worries will distract her from the purpose of the retreat and will make for a challenging day for the teachers.
This is a little kid who can be thrown off if a t-shirt ends up in the wrong drawer. This is a little kid who can't eat soup and pudding with the same spoon even if she washes it in between. This is a little girl who can't walk out the door unless all of her winter clothes are on, and who has to put these clothes on in a specific order. Having two entire days disrupted does not bode well for her anxiety level.
Snow days are supposed to stress out the parent, not the kid. It's just another challenge brought on by OCD and Anxiety.
It's April in Canada. It's been a weird year. We are currently sitting under a severe freezing rain warning, and the school boards have just closed all the schools for the day. While I think it was the safe decision, I'm not looking forward to the reaction when my little girl wakes up and finds out. You see, today was supposed to be a retreat day in preparation for her First Communion on Saturday. With school being closed today, it will be bumped to tomorrow...
Fridays are the Kid's favorite day of the week. Friday means art, hot lunch, STEAM program and Tumblebus. If the retreat is moved to Friday, none of these things will happen because the Kid will be at the church all day. And that will be enough to set her off for the weekend.
She will worry about missing STEAM and Tumblebus. She will worry about her hot lunch and what will happen to it. She will be upset that she's missing art and STEAM. All of these worries will distract her from the purpose of the retreat and will make for a challenging day for the teachers.
This is a little kid who can be thrown off if a t-shirt ends up in the wrong drawer. This is a little kid who can't eat soup and pudding with the same spoon even if she washes it in between. This is a little girl who can't walk out the door unless all of her winter clothes are on, and who has to put these clothes on in a specific order. Having two entire days disrupted does not bode well for her anxiety level.
Snow days are supposed to stress out the parent, not the kid. It's just another challenge brought on by OCD and Anxiety.
Friday, April 5, 2013
Dear Toronto Blue Jays
Dear Toronto Blue Jays,
Welcome to your new season. With all the activity in the off-season, your fans have high hopes for a return to the successes of the early 1990s.
What you don't know is you have an added advantage this year, because you have an extra angel in the outfield.
My mother, Myrna, was one of your most dedicated and passionate fans. She knew all your stats, all your names, and read the sports page first every day until she got too sick to follow the game any more. She cut out the schedule at the beginning of every season, and watched every game. She worried and fretted about you like you were her own family. When young players with families were traded, she worried and fretted. When you were injured, she worried and fretted, and would call me to tell me you were fine again and playing. When you played badly, she worried and fretted. When you played well, she rejoiced. Did I mention my mom was 86?
Conversations with my mother during baseball season were peppered with comments like "I don't know what Cito was thinking..." "Jose played well tonight." and an ongoing stream of choice words and commentary for the time that Ricciardi was GM. I didn't follow baseball, but mom would tell me all about the game anyway. Sometimes, I handed the phone to my husband so she could have a cheerful talk with a like minded soul.
My mom floored her great-nephews with her in-depth knowledge and understanding of the game of baseball. She could debate the relative merits of the DH rule. She could call a ball and strike better than some umpires, and she knew that RBI and Earned Run Averages didn't matter a fig unless ball connected with bat or glove when it mattered.
We took mom to games in Toronto a few times, but she liked watching the game on television so she could hear the commentary and see the replays. Besides, the stadium music was too loud.
Last year, the skin cancer my mom had been battling started to win. Radiation triggered strokes that caused dementia. My baseball loving mom couldn't remember how to turn on the television, and if I left the game on, she often asked me to turn it off because it was too confusing to follow.
But she still read the sports page...until the very end, my mom read about her Jays.
I know my mom was only one of thousands of fans, but in the last year of her life, when everything was taken from her-her independence, her mind, her health, her dignity, her apartment, her privacy and ultimately, her life, the Toronto Blue Jays was one of the few constants that remained and continued to bring her joy.
My mom and dad were great baseball fans. They now have seats in the ultimate sky-box, and if there are a couple of odd deflections into foul territory, you can thank your angel in the outfield.
Welcome to your new season. With all the activity in the off-season, your fans have high hopes for a return to the successes of the early 1990s.
What you don't know is you have an added advantage this year, because you have an extra angel in the outfield.
My mother, Myrna, was one of your most dedicated and passionate fans. She knew all your stats, all your names, and read the sports page first every day until she got too sick to follow the game any more. She cut out the schedule at the beginning of every season, and watched every game. She worried and fretted about you like you were her own family. When young players with families were traded, she worried and fretted. When you were injured, she worried and fretted, and would call me to tell me you were fine again and playing. When you played badly, she worried and fretted. When you played well, she rejoiced. Did I mention my mom was 86?
Conversations with my mother during baseball season were peppered with comments like "I don't know what Cito was thinking..." "Jose played well tonight." and an ongoing stream of choice words and commentary for the time that Ricciardi was GM. I didn't follow baseball, but mom would tell me all about the game anyway. Sometimes, I handed the phone to my husband so she could have a cheerful talk with a like minded soul.
My mom floored her great-nephews with her in-depth knowledge and understanding of the game of baseball. She could debate the relative merits of the DH rule. She could call a ball and strike better than some umpires, and she knew that RBI and Earned Run Averages didn't matter a fig unless ball connected with bat or glove when it mattered.
We took mom to games in Toronto a few times, but she liked watching the game on television so she could hear the commentary and see the replays. Besides, the stadium music was too loud.
Last year, the skin cancer my mom had been battling started to win. Radiation triggered strokes that caused dementia. My baseball loving mom couldn't remember how to turn on the television, and if I left the game on, she often asked me to turn it off because it was too confusing to follow.
But she still read the sports page...until the very end, my mom read about her Jays.
I know my mom was only one of thousands of fans, but in the last year of her life, when everything was taken from her-her independence, her mind, her health, her dignity, her apartment, her privacy and ultimately, her life, the Toronto Blue Jays was one of the few constants that remained and continued to bring her joy.
My mom and dad were great baseball fans. They now have seats in the ultimate sky-box, and if there are a couple of odd deflections into foul territory, you can thank your angel in the outfield.
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